GREEN BAY, Wis. (WFRV)—Shaun Kornusky, an account executive on the sales team at WFRV, has hypertrophic cardiomyopathy.
Shaun was diagnosed with hypertrophic cardiomyopathy at the age of 12 after having a cardiac arrest sudden death episode.
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“His mom brought him back with CPR until the paramedics could get there, so he is very lucky to be here,” said his wife, Shannon.
Over the years, Kornusky has been in and out of hospitals and doctor’s offices. He has seen many cardiologists to find the right fit for him.
“It’s been stressful,” stated Shannon Kornusky. “There aren’t a whole lot in the area, and there aren’t a ton of specialists around the state of Wisconsin who see patients for hypertrophic cardiomyopathy.”
Shaun has two sons, ages seven and eleven now, who Shannon says are learning about their dad’s condition and what it means for the family.
“I’ve always been very open and very honest with them about everything he’s going through, everything we’re going through as a family, and I want to do that so they get a better understanding,” she explained. “I just want them to understand what we’re all dealing with here and how serious it is.”
Shannon says as of now, he is at Froedtert Hospital under strict observation, and it’s hard on the family to be away from him.
“He’s minute by minute, and I tell people that’s how we’re all living right now because one minute, he can be stable, and the next, he cannot,” she said. “He’s struggling, I think, being what he feels like alone right now. He’s not. We visit him as much as we can, but he likes visitors, he likes making phone calls, and he likes talking to people. He’s a talker.”
Local 5 caught up with Shaun to check in on him, who has been at Froedtert since April 14. He said he is keeping the faith, and all the love and support he and his family have received have helped.
“So many good friends and relatives coming together and giving me this big hug with all these prayers has meant everything to me,” he said.
Shannon said all the hospital bills, travel bills, hotel, and food expenses are starting to add up, so Shaun’s friends and family are hosting a benefit to help him pay for medical expenses.
“I think there are over 130 baskets that have been donated,” said Shannon. “It’s just been insane how incredibly kind people have been to our family.”
Kathy’s House, right next to Froedtert Hospital, runs on donations, so a percentage of the funds will go to the nonprofit, which will provide the family with a place to stay after his surgery.
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The Benefit will have 50/50 raffle drawings, silent auction items, a DJ, and a discussion with Versiti about the importance of organ donations.
It will take place on Friday, May 10, from 4 to 8 p.m. at Stadium View Sports Bar in Ashwaubenon.
